Thanks for joining me!
I’ve decided to venture to pastures new for my 2019 sporting challenge and have joined the incredible Team CF to ride in the London to Brighton Race in September.
I want to use this blog to increase awareness of Cystic Fibrosis (CF), have fun and, of course, hopefully raise some funds for the Cystic Fibrosis Trust.
It seems that since I’ve decided on my approach, CF has never been more in the public domain than it is at the moment. The Five Feet Apart movie is due for a March 2019 release and the UK government are currently being petitioned about their reluctance to fund the new Orkambi drug treatment. All this will help to highlight CF in the UK and hopefully, on the back of that, we will see an increase in donations as the need for research and development is highlighted.
If anything I post about CF needs amending then please do not hesitate to get in touch.
Good company in a journey makes the way seem shorter. — Izaak Walton
Simon Egan 